Round 1 EOW1

OK, it is end of week 1 round 1 for me again. I find myself saying so far so good a lot. Compared to last time this time has so far been mild.  No huge weight loss or fluid loss or muscle loss. No desperate attempts to keep electrolytes and fluid in my body. No finger/foot tingling and definitely no peeling (although that didn't really start until after week 2 of round 2 last time).

This time I have more fatigue, it seems everything tires me out quickly. So far the solution is short snoozes which seem to do the trick. I did have a case of the squirts on Wed which seemed to fade by early Wed evening. I'm mostly concerned that the symptoms this time might be more slow on-set which means the worst is yet to come. I'm keeping my fingers crossed though and if the weekend is good then I'll be happy.

I've told work I'll be back on Wed next week and they are good with that. For now it is a waiting game to see what happens.

Round 1 day 3

A quick check in.  So far so good but I am not really expecting anything until tomorrow or Wednesday of it follows last year's pattern. 
If I feel this God tomorrow I may go see a movie. 

the full monty

you may have noticed this is coming from a different blog name. I copied all my cancer blog to this after I had been in remission for a while as it was really only for me to keep my observations about what was happening to me. However in case you want to read the full history between where I last had this blog email out and my personal observations on things happening in between you can go to the link below. It is public and requires no sign-in, just a period of boredom.

http://mychemoromance.blogspot.com/

And now for the bad news.

Saw Niall Wednesday, the results of the CT are not good.  My lymph nodes are back up,  almost 1.5 cm instead of the usual 1cm. This is almost certainly cancer related.  The only good news is that since it is over 12 months it means the cancer can be "re-challenged". This means I'm back to a full strength treatment again. 

It is not the same full strength because I still have the neuropathy.  So instead of cistplatin I'm getting carboplatin. Dosage is 520mg in 1l.   According to Niall it is as affective as the cistplatin but not as widely accepted in Australia. Anyway, as he says we have no choice due to the neuropathy.  I am still getting the Xeloda though.  I'm not sure what the side effects are this time, so wait and see. 

So here I am in oncology waiting for the full treatment.  At least this time it doesn't take all day.  About 3 hours.

I just remembered one of the pre-drugs,  it gives you ants in the pants,  and they are angry ants. Yes I am now remembering that one.  Margaret chuckles when I tell I remember that one. 

Gastroscopy 2

Update from Ahmad. 

My entrance to the stomach is distorted due to the tumor.  This could be the scar tissue or it could be the tumor.  As for a Stent it is not necessary at this stage.  When my eating becomes worse we can look at it then. 

Gastroscopy

It appears that the tumor is responsible for my eating problems.  Ahmad says stints are a possibility as is radiation.  Neither are urgent as I can still eat most foods.  He will discuss with Niall and let me know when we met next week. 
Oh well. 

Herceptin week update

Posting confirmation last Tuesday I noticed the increase in sensitivity in my fingers and tongue.  In fact it was a reminder to me that I had a Herceptin due on Fri.  It doesn't always register until the last minute on weeks where I don't have blood and Niall.

As for the sleepy Saturday thing,  interest variation on it last weekend.  Instead of Saturday I slept nearly all Friday night.  I was in bed by 9:30 and basically slept till around 7:30 next morning.  I didn't feel tired on Saturday. See what happens next time.