Wednesday, June 26, 2013

Round 6 tongue

I've haven't until now been able to capture a picture of my tongue and what happens to it at times.  It is one of the things that make it hard to eat. 

In the photo below I have circled  the crack that appears in the middle of my tongue. This is by no means the worst it has been at times but the first time I have managed to get a photo. It can really make eating difficult. At least now I have it recorded.

It is nearly over and I expect the symptoms that are still here to start easing now. YEEHAR!

Friday, June 21, 2013

Round 6 - The END

Yeehar!!!!

The end of the chemo drugs and yes I feel very happy about that. No the side effects have not yet worn off so I am still peeling (particularly the feet), my mouth still has trouble eating, and all the rest but this is it.

On Wednesday I got the best news I could hope for from Niall, the CT scan I had last week shows that the cancer is no longer detectable which means I am in "complete remission". I put that in quotes as Niall normally doesn't usually use words like that so it surprised me a little and made me very happy. Of course he then qualified it as he always does, which I understand, and stated it just meant it was under control not gone but that is a hell of a lot better than the alternative.

So I had my first non-chemo maintenance treatment yesterday. This is just the Herceptin drug which has very  minimal side effects. By very minimal I mean nothing quick like what I have been having although there is a small chance that it may cause heart damage. So every 3 months now I will be having a CT scan to make sure it stays under control and every 6 months a heart scan/test (I haven't had it yet so I don't know what it actually is). The non-chemo treatment is only about an hour to an hour and a half and only about 1.5 litres  so none of the expelling of previous.

Just need to work out how to celebrate now.

Wednesday, June 5, 2013

Round 6 - Week 1

Well, once again the unpredictability of the process has been fun. The break did me good and I felt much better going into this round. My hands and feet are still reasonable considering but there has been an unusual extra side effect. My toes and balls of the feet have been numb but they are not burning yet like other times so I am hoping it is a good thing.

It's nearly the end of week one so the fluid dump has started and last night wasn't good but not as bad as  I had anticipated. Since I started the high protein diet the dumps have been less severe but longer in duration. My eyes are really bad this time, they seem to be drying out much worse this time. I really hate this time of the process, I just don't feel like eating anything .

Anyway in 2 weeks it is over and I move on to maintenance. Then on to Brisbane and a holiday, which I really need despite spending a lot of time lately resting, but it is not a relaxing rest as I always feel so tired  after it. I am so looking forward to a real break .